It is time to help one of the those who has helped so many others, and
who has made so many sacrifices. It's time for Broadcasting Hope 2009
and we need YOU to help us shine the light of hope for Major and Mrs. Mark
Harris of Seymour Johnson Air Force Base and their son Johnathan. Little
Johnathan suffers from Type 3 SMA- Spinal Muscular Atrophy. There are three
types with Type 1 being the most severe that generally claims the child's
life before their second birthday. SMA is actually the most curable disorder
in children; however, it is also the #1 genetic killer in children under 2
years of age. If you think this is a rare disorder, think again - SSgt.
Jeremy Burch, who works in the same Squadron as Major Harris, has a son
Logan with Type 1 SMA. Logan is just over a year and a half old.
Researchers have determined the cure for this disorder is literally right
around the corner; however our government, at this point in time, will not
fund the research - for reasons truly unknown. If you could, please place
yourself in the shoes of Major Harris for a moment and realize how
frustrating it is to know there is a cure right next door, but you may never
see your child run because of the lack of government funding. Add the
knowledge that this disorder is a gateway to many others that could be on
the road to being cured...if only.
1 in 40 people carry this gene and most don't know it until their child is
diagnosed with SMA. In a day and age when we can pay money for Cash For
Clunkers, National Endowment of The Arts, etc. we can't pay out for
continued research for this terrible disorder. As we write this update,
we've just learned that Jakob Oliver "Ollie" Mastin, who had Type 1 SMA,
passed away in his parents arms on August 3rd in Raleigh, two days shy of
his first birthday.
Learn more about SMA here on BroadcastingHope.com and
sign the
petition to pass this bill for further research. But calling
(or writing or emailing) your Congressman or Congresswoman can have a
greater impact. It only takes 10 to 20 calls to get an issue on a
Legislator's radar screen. Just a 100 or so calls has the power to sway a
vote. And it only takes 5 minutes to call. Call the
Capital Hill
Switchboard at (202) 224-3121. We need YOUR support
for not only children in North Carolina, but across this great country and
the world!